Sorry for not blogging a whole year.
But I'm back and will try to blog regularly.
The past year has been far too busy, far too eventful, and far too ... everything I want to forget.
Dealing with my heartproblem, DCM (dilated cardiomyopathy), has been one of the main challenges.
I have lost a lot of my abilities, so I couldn't dance, could't bicycle as much and as far as I wanted, etc etc.
I also had to search for new hobbies and when I found one (dollhouses 1:12 and 1:24, or as some say miniature houses) there were so many cutbacks by our government, that I had to be far more of a caregiver than I could.
We've had a terrible year with our youngest and most serious autistic son. His care was almost non-existent. And then he was moved in one day to a flat. I'll tell you about that later.
My youngest daughter developed muscles disease and the other one stopped her studies and was forced to work. Well, she landed in a nice job, even though she has to make many hours, and she's been offered a new one with good career possibilities just a few days ago. But she still wants to go to the dance academy or become a proper professional dancer in another way, anywhere on the world. (So when you have something to offer....)
Adding to that a friend who was faced with breastcancer and another one with the same problems of lack of psychological care for her and her autistic son.
I was more busy with others than with myself.
My kidneys are deteriorating, due to the disease and the medication and recently I discovered liver problems.
So the year was not good, even though there were positive events.
I'm glad it's over, so I wish you a very good 2016.
Here you'll find impressions of my life as a mother of a few children with autism spectrum disorder and a person with heartfailure, some critical reviews of what going on in the world, including medical issues and political subjects. And everything else that keeps me busy.
I'm very honest about my experiences with autism, because only that way I can show how much of a struggle daily life with autism can be.
A series of posts
about lack of knowledge,
lack of concensus between disciplines
and the need for a formal diagnosis
with a psychiatric label
to get support for a unique individual
autism and (no) school.
One of our true autism stories Click the image.
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when you can't write my Dutch.