Tuesday, December 21, 2010

Not enough secret santas for families with autism

I worked very hard to get it all arranged well, but instead of having too many santas, which happened in the past, I have now a shortage of secret santas.

Families with autism live a difficult life.
Each day is a challendge.
Each time they have to deal with school or caretakers, or therapists, they have to stand up to get the best there is.

The brothers and sisters of a child with autism are part-time caretakers too.
Not many people realise how much experience they gain from dealing with autism.
They really deserve something extras.

In the past 25 years I've been dealing with autism I've seen many families struggling with additional costs.
My son, for instance, used his chair very intensive. At the height of his restlessness he needed two chairs a month.
I became so experienced in repairing wooden chairs, you don't want to know.
Noe he's got a very good chair from an office. They threw it away because they wanted the most modern look. And they gladly donated it to him.
Pity the other chairs were already gone to the waste installation.

Additional costs are ofcourse for therapy, extra support but also for eating habits.
Because of the hypersensitivity some children won't eat food with rough texture, or anything salty. Or they eat the same food for many many months, because it gived them a feeling of safety.

And because these children and youngsters have a limited area of interests extra costs are always present.
Take for instance an autistic child who uses a certain game at the computer. He will get better and better and eventually the cheap games are too easy. Or he needs a paid subscription.

With moms all over the world we have talked about this subject very often.
Especially when the children are young a mom wants to give full attention and because she rather prevents a meltdown than allow it to develop into a real problem, she often has to leave chores, with sometimes devastating results.
One of the moms was putting the laundry in the machine while she was preparing to leave to do some groceries. Her son was putting on his coat. And the toodler was sitting beside her. Quite iddylic, until the autistic boy started to scream because the sleeve of his coat was turned inside out.
In her hurry she realised she couldn't take the bag with her, and she couldn't leave it on the floor with the toodler, so she put it on the laundry machine.
When she hurried away it fell in the machine (she had a top door one).
She took care of her son and when he was quiet she went upstairs to get the toddler. In her hurry she switched on the machine adn by the time she realised she missed her bag it was soaked wet.

My own son has the habit of losing all the things he has with him. Including keys and ID.
Getting a new ID costs the normal prize and a fine of 28 euros.

I don't think the secret santas should financially jump in forever or something like that.
These are just examples of how life has it's surprises at times.

A secret santa can bring a smile with a few bars of chocolate, with a piece of special soap, with coupons, with a totebag filled with cookies.

Being a secret santa means being nice for someone else without expecting anything back.

Maybe you can help me out to get enough secret santas.
Maybe a package won't be there in time, but a nice mail stating something is on it's way is special enough.

When you have something special to share, maybe your old games or books, maybe beads for girls or a nice bracelet for mom and a pen for dad, comment here and I'll get matters sorted as soon as possible.

We all can do with a secret santa, but I think that families with autism should find happiness and a nright day.


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