Tuesday, December 29, 2009

Getting a diagnosis changed

december 29 2009

Ohhh, time goes so fast!
The year is almost over and I feel like I need to do so much more in this year.

Did a lot today, was bluntly disturbed in my hard work by a very unwelcome matter I don't want to blog about, and got all settled and done with, only to find out that many hours had passed, the laundry was still not hanging and I'm still feeling hurried because some things need to be done NOW!

Because I'll see the psychiatrist of the boys tomorrow I worked hard on my reply to the diagnosis someone at the department there made.
I guess her specialty is schizophrenics and she doesn't know a lot about autism, because she mistook his autism and described it as schizoid characteristics.

I feel he won't get the support he deserves with that diagnosis, and maybe even will be medicated the wrong way.
It's not that I can't deal with a diagnosis like that and make people clear what it's all about, but there's some very strong inner gut feeling that it's wrong and I should stand up against it.

Problem is that there's never even half an hour I'm not disturbed in my thinking, and that I have to write it all down.
It's easier for me just to defend my point of view verbally. I know I'm right. And I know that when they see me and the professional in me they'll forget I'm the mom and take me far more serious.

Now I have to go against the decision of a team, and find all good grounds why I want to do so.,

Well, one of the reasons is they focused on his development when he was 5.
He's 18, and I've got 6 kids. So at moments my memory is a blur and needs a bit of massage to see things clear.
That psychiatrist or psychologist or trainee or whatever she was questioned me 3,5 hours!! I felt more of a criminal than a mom of a child who deserves the best.

She never ever asked which situations changed when his behaviour changed, so I can't say she's very professional.

I've described his development in a way I would do for a patient/client, then posed the differential diagnosis, that is the choice of 2, autism and schizoid.

And now I'm giving all arguments for and against those two.

Well, if he were my patient he would get the diagnosis autism spectrum disorder and not schizoid traits.

So let's go for it.

Keep your fingers crossed all will be right.

This post is part of a series
about lack of knowledge,
lack of concensus between disciplines
and the need for a formal diagnosis
with a psychiatric label
to get support for a unique individual
with autism.

In case you're interested in a rather critical view on our HPV vaccination for girls, go to my other blog, and if possible retweet. Thanks!


  1. It's hard when you feel like the doctors have the wrong end of the stick, huh? I was told a while back by a specialist for my son (who has Asperger's) that she thinks I have it as well, at another time I had an appointment with a psychiatrist who said I have Schizoid Personality Disorder! From what I've read about SPD it's a fairly common misdiagnosis for Asperger's. In my case I'd be more inclined to agree with the Asperger's dx since my son was already diagnosed with it. For you, you're a professional in the field yourself AND you have other children with the disorder, so the "experts" SHOULD be more inclined to listen to your views on the diagnosis. Good luck!

  2. Go with your gut! Your right it doesn't seem like she asked proper questions. I would feel the same way you do.


Thank you for your comment.