Friday, April 24, 2009

Some good news about my autistic son

april 24 2009

Yesterday I got a mail from the commission that has to decide whether my autistic son (4th son, Kanner Autism) can get a chance to apply for a place in an auti-class at a school for hearing-impaired children.

He has to show a huge lack of communication skills.
He doesn't.

So I'll report that to the council representative who wants him to go there.

I have to say it was a huge relief when it was clear he won't be admitted. (Unless that councilwoman bends the law.)

The conversation I had with one of the coordinators at the school was pleasant and very friendly. Her experience was that the council representative "doesn't know a lot."
We agree on that. LOL!

Today I got a mail back from the person who is an intermediary between my autistic son (Kanner Autism) and a protected daycare/workenvironment.
Next Tuesday we're going to have a look at that place.
My son is very enthousiastic to go and so am I.

Already I see days I can do something really substantial in the house, like painting their room.
I never can. because he's at home all the time.




That the choice for the protected environment is a good one is something that shows in his behaviour.

For the first time in his life he went to the shops on his own, and bought a cheap game in the sales.

Right at this moment I feel happy about that.
He's almost 17 and I think he's supported more by teaching him real life skills, than teaching him maths, economics and history.

I'm sure the council representative doesn't agree with me but I bet she has children that sneak to the shops and buy themselves energydrinks and chewing gum whenever they have a few spare pennies.
Dealing with autism means making the right choices for your child.
Every skill needs loads of motivational effort, loads of practice and even now my son is able to buy things in a small shop on his own, it doesn't mean he will be able to do so next month or go out this afternoon to buy a bread.

Why not?

This morning he knew exactly what he wanted.
He's been there yesterday, and picked the game to buy.

Bread needs to be bought at another shop, and it means making the decision which bread to chose from a lot of different ones.
It means other people, a different counter, other noises and other lights and smells.
Even the feeling within himself might be different.

Added it all up, it's to him a completely different experience and the outcome might be far different from what we wish for.

That's autism for him, and me, and our whole family.






This month I'm fundraising for autism,
but who cares?.
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Read more about it here.


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4 comments:

  1. Do you have a Early Intervention Program there? I have a daughter with Down Syndrome and she has been going to school since she was 3. How old is your son? My daughter is 10 but she will be 11 next month

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  2. I hope that things work out on this one!! It sounds like it could be just what you need :)

    BTW I got you added to the blogroll at the new From Huskies to Husbands since I am not blogging at today.com anymore... Come see me at http://fromhuskiestohusbands.blogspot.com :) and update any links you might have for me please :)

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  3. I very rarely comment, Laane, but I do read your posts. I empathize with your struggle to get your son in just the right place and to make sure you have his needs met. I cannot offer insight or advice, only that I'm with you on your struggle. I hope you know how much I admire your fighting for your children and how brave you are. I'm sure you have days where you just want to quit, but you never do. You are an inspiration and I wish you the best of luck.

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  4. see the Lord's answer was fast c: am happy for you and your son c: God bless you and your family more c:

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