Friday, August 1, 2008

friday's feast, Jodies 1 august version

august 1 2008

This week the questions are from Jodie.


If you learned today you were going to die tomorrow, name three things you would do.

1. I would write a letter for my extended family, explaining that I had to choose for my own children, instead of fighting their opinions. (They don't believe autism is a real disability. They think it's just a modern thing that people bring up to get attention.)
That I've missed them, but that I've also been able to choose my own path of growth.
That's I've always been amazed they didn't find the way to my front door.

Then I'll write a letter to my friends, telling them what they have meant in my life.
Because life with my children has meant a tremendous loss of social contact my friends have meant the world for me.

And I'll write a letter to my children giving them the wise lessons of life.
Then I'll say them all goodbye.

2. I'll book a flight to the dessert and leave with some of my musical instruments.

3. I'll make music and then walk into the dessert, until life walks over me.


What is your very first memory?

I'm not sure.

I remember flashes of being at the beach. I was 2.
I remember being on a sleigh with a special coat on, being on a tricyle, and playing with a toy-iron. I was 2 too.

And being with my granddad. He died when I was 3.


Name one service you are willing to pay for and one you are not.

Pff... that's a difficult one.

I'm not willing to pay for a dyslexia test for two of my children, because when a child can't hear the test is paid, but when a child can't proces something seen the test isn't paid.

I don't know what service I'm willing to pay for... I do everything myself.
When my autistic son would want to go each week for an afternoon with someone, I would pay.

Main Course

Do you make your bed every day?

No, I don't.
None cares.


Name the most significant thing you learned this week.

I learned for the first time in ages that there's someone who really cares that things go well in this family.
The psychiatrist of my son really helped me.
He trusted me a full 100% in my description of my sons functioning, and he backed me up in every detail.
For the first time in all those years I've experienced working as a team for this family.

For the first time in ages I said aloud that I wanted to work professionally again.
(Which resulted in the father of the children having a terrible bad mood, because he's got an autism spectrum disorder too, and he can't deal with changes, and can't deal with his own family.)

Want to take part too?
Go to Jodie!


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